As part of the Better Care Before Death group (in the DAPPLE project), we have to listen to stories about people with learning disabilities coming to the end of their lives and the treatment that they have been given. This is so that we can make things better for people. A researcher comes to our meeting to tell the story about a person but beforehand they have spoken to Fred about the story. He then turns the story into a picture story for us. This helps us understand and

I have been thinking about this: How can we support people’s ongoing need for relationships as their lives draw to a close? This may be especially important for people with a learning disability. To be ‘seen’ and known as a person, they rely on the relationships, community and social structures that enable them to live their own life. Listening to people’s experiences For the past year, four of our DAPPLE researchers have spent time with people with a learning disability who