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Co-production & engagement

 

Working together with people with a learning disability

Throughout the DAPPLE Project, we will work closely together with a group of about ten people with a learning disability (including people from each of the four study sites).

The group will meet every month (mostly online, but sometimes in-person). They will:

  • think about the emerging findings

  • give feedback, ideas and tips

  • help to develop videos, blogs, articles and other outputs.


Engagement with stakeholders

Our Research Advisory Group has representatives from a wide range of stakeholder groups (including people with a learning disability, family carers, learning disability services, palliative care services, commissioners and policy makers).   

Right from the start of the DAPPLE project, we will engage with a wide range of audiences through social media activities, regular blogs and webinars. If possible, we will share emerging findings. We welcome feedback, so do get in touch  with us!

 

Producing information, guidance and training

This will include:

  • Resources for health/social care professionals and carers, on the Open University website

  • Written actionable recommendations and policy guidance

  • Exemplars as comprehensive case studies that everyone can learn from

  • Materials for varied audiences (including video and easy-read)

  • Articles in academic journals

 

Most of these will be produced towards the end of the project. We will share our findings and conclusions at a national conference in July 2027.

 

The co-production and engagement activities will be led by Kingston University:

Richard Keagan-Bull (co-lead)
Jo Giles (co-lead)
Fred Inglis
Amanda Cresswell
Sundeep Sokhal

The online training resources will be produced at The Open University:

Professor Erica Borgstrom (lead)

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This project is funded by the National Institute for Health and Care Research (NIHR) under its Health and Social Care Delivery (HSDR) Programme (Grant Reference Number NIHR159160). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

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