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A study (2022-2024) resulting in the creation of a toolkit of resources and approaches to support staff with end of life care planning with people with learning disabilities.

This was done together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. The toolkit includes newly created pictorial resources that are freely downloadable.

Getting Older screenshot

A study (2020-2023) about supporting older people with learning disabilities and their families. This resulted in the creation of a set of pictorial conversation cards for families living with older people with learning disabilities. The cards can help people to think about the future, prepare for parental death and transitions in care.  They are freely downloadable.

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This project is funded by the National Institute for Health and Care Research (NIHR) under its Health and Social Care Delivery (HSDR) Programme (Grant Reference Number NIHR159160). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

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