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28. “I’m glad she got to tell her story before it was too late”: Why people might say YES to being in the DAPPLE study
The year was 2006. I was about to embark on what would turn out to be a research-career-defining study. I wanted to spend time with...

Irene Tuffrey-Wijne
Aug 22


27. The DAPPLE Project Protocol: Now Published!
We are delighted to share that the protocol for The DAPPLE Study has just been published in BMJ Open. You can read the protocol here ....

Fred Inglis
Aug 14


26. Lights, Camera, Action! Filming the Print and Deliver Video
One of many reasons I love working in the Learning Disability Research Team at Kingston University is because we are – as Irene...

Fred Inglis
Jul 31


25. Sawubona (I See You) National Forum Conference
On May 6th, I had the privilege of attending the Sawubona National Forum , a powerful gathering dedicated to transforming palliative and...

Francesca Horne
Jul 24


24. Conferences can feel like a long haul flight… but this was like a cruise!
Hello everyone! My name is Mo. I am a Research Assistant in the Learning Disability Research Team at Kingston University. I don’t work...

Mo Hakim
Jul 17


23. Getting the rubber stamp to do research in the NHS: first we need to do some jargon-busting.
When we first started setting up the biggest part of the DAPPLE study (listening to people’s stories) we knew there would be hurdles....

Christina Roberts
Jul 10


22. Video-recording conversations in a hospice: The PallComm pilot study
I am really into how we communicate with each other. So much that I have specialised in analysing communication. My background is in...

Andrea Bruun
Jul 3


21. All about the numbers
Freya Tyrer is leading on the “big numbers” part of the DAPPLE project. In this blog post, she tells us what the numbers are saying about...

Freya Tyrer
Jun 26


20. Getting our head around stakeholders
Are you a DAPPLE stakeholder? You are reading this blog, so the answer is YES! But what is a stakeholder? And why do we want to know...

Irene Tuffrey-Wijne
Jun 19


19. DAPPLE at the European Association for Palliative Care (EAPC) 2025
From 29-31 May, the European Association for Palliative Care (EAPC) held their 19th World Congress in Helsinki in Finland with the theme...

Andrea Bruun
Jun 12


18. Richard’s Cuppa tea celebration for his podcast
Richard, Irene, Jonny, Anastasia, Sunny, Mo and Fred saying 'Hello' from The Shard! Richard and the podcast team – Irene, Jonny,...

Sunny Sokhal
Jun 5


17. Richard appears on The Sui-Ling Show
I am used to interviewing people for my Podcast 'Cuppa Tea with Richard' . Recently, it was my turn to be in the hot seat, when I...

Richard Keagan-Bull
May 15


16. “I felt a warmth between us”: Recording an episode of my podcast, A Cuppa tea with Richard, with Mel Giedroyc
Richard and Mel raise their cups of tea and smile after recording an episode of A Cuppa Tea with Richard. My name is Richard Keagan-Bull....

Richard Keagan-Bull
May 8


15. The power of stories
What leads to real improvement in how people with learning disabilities are supported by health and care services? And how do we know...

Liz Tilley
May 1


14. What will comfort you at the end of your life?
Last month, the DAPPLE team held three creative workshops in Yorkshire as part of our Co-production ‘Roadshows’ (so-named by my colleague...

Fred Inglis
Apr 24


13. We are more than just the 'Hat Game'!
I’ve become aware that our team has become known for our hat game. I know… we post a lot of pictures with people in funny hats, so...

Jo Giles
Apr 17


12. I have a learning disability. This is why I became a researcher.
People with a learning disability need to be involved in research. Especially when the topic is so important – The DAPPLE Project is...

Sunny Sokhal
Apr 10


11. The first DAPPLE posters
Back in December 2024, members of the DAPPLE team went to the Seattle Club Conference. The conference was held in London (not Seattle!)...

Andrea Bruun
Apr 3


10. I love conferences!
Hello, I’m Amanda Cresswell. I have a learning disability and I’ve also had cancer. I’ve been a researcher at the university for 15...

Amanda Cresswell
Mar 27


9. Let's be more 'Rebecca'!
A few years ago, my partner and I had to sit our (then 6 and 8 year old) kids down to tell them that Col, my partner, their dad, had...

Jo Giles
Mar 20
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