As part of the Better Care Before Death group (in the DAPPLE project), we have to listen to stories about people with learning disabilities coming to the end of their lives and the treatment that they have been given. This is so that we can make things better for people. A researcher comes to our meeting to tell the story about a person but beforehand they have spoken to Fred about the story. He then turns the story into a picture story for us. This helps us understand and

The other week we gathered around the talented researchers to do some training. We focused on those researchers who will be going out and learning about people’s lives and how they are supported by different services and those around them, especially when they have a life-limiting illness and may be towards the end of life. They will be going to four parts of the country and, through their engagement with people and services, developing a sense of case studies. To do this, th