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56. What is it like to listen to stories of people with learning disabilities and their treatment at the end of their lives?
As part of the Better Care Before Death group (in the DAPPLE project), we have to listen to stories about people with learning disabilities coming to the end of their lives and the treatment that they have been given. This is so that we can make things better for people. A researcher comes to our meeting to tell the story about a person but beforehand they have spoken to Fred about the story. He then turns the story into a picture story for us. This helps us understand and

Richard Keagan-Bull
May 28


37. LEARNING DISABILITY or INTELLECTUAL DISABILITY… What’s in a name?
Words matter. Names matter. Your name is part of your identity, it’s your visiting card. Hello, my name is… and what’s yours? You want to feel that your name fits you like a second skin. If your name is too much of a mouthful, it will get shortened, so you’d better get in there quick. You want to make sure that the shortening that makes sense to you and, crucially, that you like it. That’s why we changed the name of this project, from the Developing effective service models

Irene Tuffrey-Wijne
Nov 13, 2025
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