42. Video: Getting End of Life Care Right for People with a Learning Disability (Webinar)

In December we were delighted to host a webinar introducing The DAPPLE Project. Presented by Irene, Amanda and Sunny live from the KIND Research Group headquarters at Kingston University, the session brought together researchers from across the project to share what we have learned so far!

What the webinar covered

What is the DAPPLE project? An introduction to the study and why improving end of life care for people with a learning disability matters so much.

“Counting the numbers” - Dr Freya Tyrer (Leicester Real World Evidence Unit) This talk explored national electronic data to understand differences between people with and without a learning disability, including how palliative and end of life care needs are identified and how healthcare services are used before death.

“Listening to managers and commissioners” - Professor Louise Wallace & Dr Ned Redmore (The Open University) Drawing on interviews with senior service managers and commissioners in four areas of England, this presentation highlighted what is currently happening on the ground and the challenges services face in delivering high-quality care.

If you missed the webinar, or would like to see it again (even if just to re-watch the festive finale!), the full recording is available below

What’s next?

We’ll be continuing the conversation about end of life care for people with a learning disability at our next webinar on Thursday 5 March 2026. Register here:

Written by Fred Inglis, Co-production Manager, Kingston University